This Guide provides access to databases and web based resources useful for locating a wide variety of research instruments.
American Thoracic Society Quality of Life Resource Instruments
The goal of this website is to provide information about quality of life and functional status instruments that have been used in assessing patients with pulmonary disease or critical illness.
Cancer Prevention Research Center
Cancer Prevention Research Center provides access to copyrighted psychological measures developed at the University of Rhode Island Cancer Prevention Center. Permission is granted to use these transtheoretical model-based measures for research purposes provided the appropriate citation is referenced. All assessment inventories are available for research purposes only.
CINAHL Plus Research Instruments
CINAHL Plus provides access to research instrument records, research instrument validation records, and research instrument utilization records. These records indicate which studies have used a specific research instrument and include the purpose and variables measured, sample population, methodology, other instruments, items and questions, where the original study was mentioned, and how to obtain the actual research instrument.
Funded by an NIH grant, HealthMeasures consists of four precise, flexible, and comprehensive measurement systems that assess physical, mental, and social health symptoms, well-being, and life satisfaction along with sensory, motor, and cognitive function: PROMIS®, NIH Toolbox®, Neuro-QoL, and ASCQ-Me.
Medical Outcomes Trust Instruments
Medical Outcomes Trust Instruments provides a list of instruments approved by the Scientific Advisory Committee of the Medical Outcomes Trust. Records include a description of each instrument. Readers must contact the original author or source cited for each tool to obtain approval for its use.
PROQOLID™ was created in 2002 by Mapi Research Trust to extend access to Patient Centered Outcome resources to the scientific community. PROQOLID™ is supplied exponentially with new instruments throughout the year based on recommended sources such as the U.S. Food and Drug Administration, European Medicines Agency, and Research and Development scientific community.
Rehabilitation Measures Database
The Rehabilitation Measures Database was developed to help clinicians and researchers identify reliable and valid instruments used to assess patient outcomes during all phases of rehabilitation. This database provides evidence based summaries that include concise descriptions of each instrument's psychometric properties, instructions for administering and scoring each assessment as well as a representative bibliography with citations linked to PubMed abstracts. Whenever possible, we have also included a copy of the instrument for users to download or information about obtaining the instrument. This database was developed through collaboration between the Center for Rehabilitation Outcomes Research (CROR) at the Rehabilitation Institute of Chicago and the Department of Medical Social Sciences Informatics group at Northwestern University Feinberg School of Medicine with funding from the National Institute on Disability and Rehabilitation Research. The Rehabilitation Measures Database and its content were created by CROR.